Our first day home...

Monday was a very long day. We were packed up and ready to go in the morning but didn't get to actually leave until almost 6 :P What took so long was that we had to wait on his pulse-ox machine. It measures the level of oxygen in his blood and his heart rate. We have a notebook that we have to record what he eats and when, his heart rate and oxygen stat and keep track of his weight. Its alot- but all this work is helping keep him healthy so its worth it. It made me so nervous when a nurse the other day told me that even when babies go home in good health sometimes they still pass away once they go home, and that really scares me. But we got all settled in, and my dad came to help out the first night and to get a few things we didn't receive at the shower that we needed which was very helpful! Today my mom and brother came to see us and help out and my friend came by last night and dropped off all kinds of clothes and activity things for him :) That was sooo nice too and helped save us a lot of money. It felt really weird having him home FINALLY after all the waiting. Our place is a disaster since we haven't been here for almost a month so I have a lot of work ahead of me :P But having our family together is just a nice, warm feeling. The cats are getting to know him- and Red even gave him a little nuzzle on the arm today! Tomorrow is our first pediatrician appointment, and then next week he starts seeing his cardiologist once a week until his next surgery which is tentatively scheduled for October/November.

Is everyone still able to get these updates? Since no one has posted on here I just wanted to make sure you are still able to keep up with him.

IF YOU WANT TO HAVE A MESSAGE TO PARRISH PUBLISHED IN HIS CAREPAGE BOOK, PLEASE ADD YOUR COMMENTS ASAP because the ability to make it into a book won't be available after July 31 and I want to make sure to order it- so POST BEFORE THE END OF THIS WEEK PLEASE!!!!!!!!!!!!!!

love to all!
ashley